IMPORTANT!

My sons are entering what I like to call full adulthood. They are at the stage where they tackle problems on their own and let their father and me know the outcome. This is great to see, because we have all done the work to prepare them to do this and while they are relatively open with us and seek advice occasionally, more and more they’re trying to involve us less and less. It is a natural progression that is both beautiful and slightly unnerving to witness this carving of paths and shaping of lives and as their mother, I have to accept this aspect of their independence. Their father is far better at it than I am.

I check myself before I convey how I feel about them or when I want to give that boost of confidence they might need. The innate desire as their mother is to go back in time when I would hold them in my arms and tell them how special they are and how proud I am of them and end the pep talk with a big hug and a kiss on the cheek — but we’re not there anymore and those moments are what I refer to as fond foundational memories. I know they have dark moments. We all do. If you are alive you have dark days. In a world with so much failing around us, it’s impossible to avoid dark days when you feel like no matter what you have done right, everything is piling onto you. I am from the generation where we were told that we shouldn’t whine,that no load is too heavy to bear, that we had nothing to complain about and to suck it up. Today, we can go to the extreme if we are not careful and we can fail to teach our youth how to cope. Other times we can disable them by jumping in and disarming them of problems by solving it for them, parent-style. We walk a fine line as parents no matter the age of our children and we have to come up with ways to lift them up without patronizing them or disregarding their ideas and opinions.

Last week, one of my sons was working through an issue and we could tell in the initial phone call, he was upset and was making rash decisions and spoke about giving up on something he has been working so hard to achieve. He had done nothing wrong but the circumstance in which he finds himself is unfortunate and out of his control. All he could do is be his best self within the organization in the midst of the disarray and work on ways to get out and transfer to another that would be a better fit. After listening to what he had to say, we gently reminded him that over the years when we opened the door for him to quit, he never did and that he needed to give himself twenty-four hours to cool down and look at it with fresh eyes and not give in to making rash decisions.

The next day we listened to a much calmer young man who reiterated that he was not a quitter and that he was thinking with a clearer head and planned to take things patiently, day by day and continue to do his best until something better came along. We were happy to hear this but not surprised and it was then I recognized I needed to tell him something I hadn’t outrightly ever said to him or his brother in their teen years and this was the perfect time to tell him why I agreed with his plan. I simply said,

“This plan makes sense to me because of how important you are,” I began. “I hope you know that you are important, son,”

His silence indicated he was waiting for my explanation. I told him that beyond his academics, job and his sport; beyond his importance in our family and his circle of friends; he is important to society. I told him I was aware that he knows he is a good human being and I want him to remember that society, our community and any future community in which he finds himself, needs him. The world society needs humans like him. He is important for the survival of our species and our planet because he is a human who wants to do the right thing and knows how to get things done. He is a human filled with compassion and patience and he is a kind, loving and always-willing-to-help human who spreads happiness and joy. And while we are all flawed, he makes us proud parents because he is the best of us plus all the innate goodness he showed up with nineteen years ago.

I imagined what it would feel like to be told how important I was at a young age. If sometone tells me that now, I believe it because I am a parent, a provider,I provide service to clients, I am knowledgeable and I have the means to teach and to help. But when I was young and had nothing tangible to show in order for me to feel important…man, if someone explained why my mere existence and my actions made me important, hmmph, that would have lifted me up beyond the stars. We need to tell people they are important. We need to let them know that we see the role they play in life and why they are vital to our existence.We need to tell them that they don’t need material possessions or titles to be important because they are one unique and special piece of a much greater jigsaw puzzle that is life and we can’t be whole without them. We need to show them how their very presence on the planet is key to the success of many other people and that everything they are a part of would be worse without them. And while everyone is important, our young people are especially so, because they are the ones to take us into the future — a future, I might add, we have severely tarnished — a future they have to fix. We need them. We need them to cope so that they can survive. We can save their lives if we tell them how important they are…tell all of them, not just the ones who appear vulnerable. Tell them all!

You are important. You are needed. You represent change. You represent hope. You are the best of us and we are here to help however and whenever we can because you are important and the world does not work without you.

Human-Kind

My son was not well at school yesterday.  When his teacher called to tell me he was feverish and sleeping in the quiet room, my heart sank.  It sank for him because yesterday was a day of the long awaited fulfillment of plans.  He was waiting for almost a year to go to a concert in Kingston with his support worker and friend, Lindsey, and the rest of the family was heading to Toronto to see a dress rehearsal at the National Ballet for my birthday. But that’s family life. Things are planned and plans change and we chalk it up to bad timing or bad luck or what have you. The James family day of artistic appreciation was taking a big hit.

My husband, eager not to disappoint (Tom is big on birthdays and hates to disappoint us) asked me to call around and see if (a) we could get Adam to a doctor to maybe have him quickly checked out (Adam is autistic so on the rare occasion when he is ill and it seems significant enough we like to get him checked out as he sometimes does not explain his symptoms properly) and (b) see if someone could stay with him while he rests in bed or (c) see if someone would go in his place and he would stay with Adam.  Willing to pull the plug on all of it (I am not big on making a fuss over my birthday and I am okay with disapointment), I compromised and called around to see what I could do.  The doctor said it sounded just like a cold was coming on or a flu and if he was the same the following morning to bring him in. Everyone else I called was going to this concert so I decided to fold and called his teacher to tell her Tom would pick up Adam from school and bring him home.

Well, wouldn’t you know it, Mr. Adam, now 18, insisted on coming home on his bus.  He absolutely did NOT want his father to pick him up from school. He was willing to take an Advil and come home on the bus AND he was going to the concert. I could hear him vehemently stating his case, so to avoid a lengthy argument, we let him come home on the bus. By the time he got home, he had a big speech all planned that involved telling us in every which way he was going to the concert.  He was not burning up, he had a bath and as per the doctor’s suggestion, I gave him a Tylenol to go along with the Advil he’d had a bit earlier. He was perked up. He dressed as per Logan’s style suggestions in a light t-shirt, with a bluish hoodie, a black boxy jacket and his grey joggers that Logan gave him for Christmas. He ate a sandwich as a snack and showed me he’d eaten all his lunch at school and he was listening to the band he was going to see through his headphones.  He was going and THAT WAS THAT.  When a child who has never really been able to decide much for himself looks you in the eye (a thing rarely done by autistic persons) and puts his foot down regarding his own life, you have to respect it.  I had to respect his judgement.  He is 18 and is finally able to do what we have been waiting on for so long which is for him to express himself in a clear and well thought out fashion.  Against all of my maternal instincts, I agreed with his father, brother and teacher and with Adam and he went to the concert and we went to our show. After all, I remember taking the Comtrex back in the day when being at the party was of utmost importance to me. It was not easy to get to go out when I was younger and living at home with John and Angela. It is the same for Adam. It isn’t easy for him to go do a lot of stuff on his own and I can only imagine how frustrating it is for him to be stuck with Tom and Daniella when he knows people his age have so much more freedom. Mind you,Adam has a lot more freedom than most people with autism his age but there is always room for more because he has had a big taste of it , so who am I to stand in his way when I opened this door to his possible freedom for him? I have to respect his needs and decisions even if they are hard for me to do so. Should he have stayed home last night?  Most likely, yes, but I am not him and he REALLY wanted to do this and he got to do it even though it was miserable. He had full control of his life for a night which is after all, the point of growing up, isn’t it?

When Lindsey checked in with me, everything was good. She sent a photo of them smiling. They had eaten and had arrived at the venue. There was nothing to worry about as he was fever free and was smiling and happy. Around 7:30 we were involved in something going on before the performance when Logan noticed the Snapchat on his phone going off. He chose to ignore it at first but the Snaps kept coming. It was his friend from hockey and school whose mother also happens to work with us. Checking out the messages, he smiled and said that his friend just said he saw Adam heading into the concert.  A bit later on, the same friend Snapped again to tell Logan that he wanted him to know that Adam was throwing up in the tunnel of the arena and that he wanted to let him know in case his helper did not tell Tom or me. Of course, Lindsey had her hands full at the time and did text me a short time after and said that all was okay and though she offered, Adam was insisting he stay as long as he could and that she would pull the plug after a few songs.

Here is where the human kindness comes in. We (mostly I) worry what will happen to adult Adam when we are not around to look out for him. Not yet capable of being 100% independent, Adam is probably at around an 80% capability of independence right now and will to my best guess top out at about an 85%.  He may surge to 95% and prove me wrong, which will be fantastic but from what I know now, he will be able to live semi-independently, in that he may need support when it comes to getting to places on time, being mindful of his schedule and with his purchasing ability to a degree. I do not have this worry over Logan. But what this story proves to me, is that I have less to worry about than I thought because some of the people in this little town which I moved to kicking and screaming (I am more comfortable in cities), may not be perfect for me but is is for Adam. I have had neighbours and friends call me to tell me that they had just seen Adam walking over at place X and they wondered if that was okay and if I knew he was out of the house. At the time, Adam was on his way to work or practice and they had not known that he was at that point of independence and it was very reassuring that people (adults) do know him and want to make sure he is safe. What was the icing on the cake for me last night was that it was a soon to be 17 year old youngster who saw Logan’s brother and not only was happy to tell him that he had seen Adam, but was concerned enough to contact Logan again when he saw that Adam was not well. In an age of Millennials who barely speak words, (which is ironic because one of the biggest goals with Adam was to get him to communicate with words)  Tristin, at 17, showed the human kindness and concern I hoped Adam’s peers would show towards him and us. So many people turn a blind eye. So many people keep to themselves. So many people do not make time to connect with good friends, old friends or make new friends, it is nice to see that a teenager – someone who is a part of the most criticized group on the planet – was able to show such basic human kindness and therefore maturity which has been lost on many Millenials. Tristin used the same device teens are criticized for using excessively, to Snap his friend and let him know about his brother because he knew it was the right thing to do. The human kind thing to do.

Lindsey was as usual her wonderful human kind self.  Some of the support persons we had when Adam was younger would have bailed and brought him home and insisted we come home or would not have agreed to take him and give it a try. I already was loaded with guilt and “if only’s” and she did her best to put me at ease. She is also very keen on treating Adam age appropriately and respecting him as a young adult who can make wise decisions and choices. Adam tried to stay for a few songs but he ended up sleeping with his head rested on her shoulder before she woke him and skipped out of the venue and brought him to her home where she put him to bed. She told me how sorry he was that he got sick in the tunnel and that everyone was looking at them (which is an extremely rare thing for an autistic person. Since when does Adam care what people do or think?) Lindsey told him he did nothing wrong and it just happened and he was not to worry about it or worry about the people who were watching because it was none of their business, to which Adam replied “Yeah, $%^% them!” in between hurls. (Well he is 18, he has ears, has internet access, loves you tube and goes to high school – hence the answer, lol)

How fortunate and blessed we are to have put together such an amazing team for Adam in what are the most important years of his life as he launches into adulthood. We had been exposed at times to fantastic people who personally supported Adam as a child and many who were fabulous in the rough teen years, and now on this springboard upon which we stand as we prepare to let the world have our boys and let them fly into this unknown (to them) phase of life called adulthood, I couldn’t ask for a better team.  We have a great young male role model in Sebastian. In Courtney, we have a perfect just -a-year-older peer who teaches Adam how to be and in Lindsey we have a friend who is practically family. She has been with Adam and Logan from the time they were 9 and 7 when she was their teacher, then their tutor and now just a great support worker for Adam and I trust her so much that she is included in much of the decision making when it comes to Adam’s future.

There is so much to still worry over. The world will never be ideal no matter how easy it is for us to make it ideal for everyone by just acting out of love and human kindness. It is reality and we must accept it because we aren’t doing enough to change it. My worry however, is far less than it used to be because in this little town in which I have not found my groove, there is a groove for our Adam. As much as I love the city and Adam enjoys being in the city, a groove would have been much harder to carve out for him there. In fact, it would have been close to impossible and it would have been frightening to think of all that he would be vulnerable to in such a large, busy environment. I know my younger child will fly far from the nest. He has a lot of me in him and he will not settle in one place for a very long time and I understand why. But I am satisfied that my older child will thrive in an environment that is home to kind humans of all ages who are decent and good. The stories about Autism are not always uplifting. Autism is difficult. Autism is puzzling. Autism is isolating to the person and their family. Autism can feel like a life sentence that no one signed up for. Today, my story is one of hope for not just people with autism, but for all people. In spite of my weariness. In spite of my worries. In spite of my frustration. In spite of all the road blocks in this journey with Adam. In spite of my life, I have hope in humankind and this 51st birthday will be one to remember as the birthday when I felt in my heart the kids are going to be just fine.

 

 

2015 – The Year to Move Forward with Love.

When my husband and I renewed our vows in 2007, we’d been together for 10 years.  He waited until the last minute to write his vows to me and he stole the show to say the least and brought tears to my eyes.  In them, he promised something that still sticks with me to this day and it was to continue hand in hand with me on the roller coaster that is our life together.  I held on to his words every day last year in what was the most difficult one for our family.  Our pain and struggle came in the form desperately trying to save our son who was struggling for his independence while living with autism and going through puberty.  Suffice it to say, when things are not right with a family member every aspect of everyone’s lives is affected and it seemed like there was a dark cloud hovering over our heads.

Though the roller coaster of 2014 was the harshest and most stomach churning of all our years since the children were born, I can speak on behalf of my husband and sons and say that it was also one of the most enriching and rewarding because it is in hard times that we see who we really are and who to call acquaintance and who we can truly call friend and who need not accompany us into the new year.  2014 reminded me that love is the only answer, ingredient, magic trick, drug, tool or whatever you want to call it that can truly change anything. Love turns darkness into light.  Though I have always been surrounded by love, it is only as I have gotten older and more in tune with who I am and who I will eventually settle to be, that I know how to truly love.  And by that I mean love all people and how to find love in different situations and places.  Love can save a child, can save a marriage, a life or many lives.  It can put food on a table, toys in the hands of a child, wrap a warm blanket around a homeless person or simply a smile on someone’s face.  I was fortunate to be surrounded by love and a lot of it came to me via virtual strangers whose kindness have made them part of my family.

I have always made a point of giving. Giving in ways that matter. Giving subtly and  because my family was so fortunate to have received so much love this year, it encouraged me to seek it out more.  My husband and I found ourselves looking at documentaries about people who changed communities by simple acts of love.  I found myself smiling even on the hardest days, knowing that we were still better off than so many around the world.  I found myself listening more, caring more and I was inspired to be less angry, less sorry for myself and my family’s situation and forge into 2015 with hope.

2014 also taught me that to move forward with love, you have to choose how best to spend your time and with whom.  Moving forward with love also means cutting off the sticky, clinging arms of those who hold you back.  You know, those whom you like well enough but there is an underlying quality of their nature that is corrosive and it doesn’t do anything positive for anyone?  Yeah, those people.  The ones you are polite to, tolerate as you listen to their incessant whining about something so frivolous you don’t understand how evolution hasn’t made them extinct by now.  The person so absorbed in their own destructive behavior that they have no clue that they are dragging down the ones who love them the most. Yeah, that person.  The rather rude person who needs to be seen talking to the right person in the crowd and if that happens to be you, you can set your watch to the exact time when they walk off and head to someone they deem more popular than you, in spite of the fact you’re in mid-conversation with them.  Particularly amazed by that particular breed of human. Then there is the friend who commends you for being the rock they needed in their time of struggle but doesn’t have the decency to ask how you’re doing or make a concerted effort to spend time with you as you do your best to get through each day.  That person is from the always baffling, self- absorbed centre of the universe club.  But in my quest to embrace more love, I have not come to bear any malice towards these people.  I truly do love them.  Love them enough to forgive them for not being smart enough, or kind enough, or sensitive enough to others. Love them enough to let them go. And while I am happy to forgive them I won’t forget not one precious second of my time be wasted on them because it will deprive others of what I have to give.

2014 showed me how much my mother and my sister, my cousins, aunts and uncles, father-in-law and SJC sisters love me and my family.  It showed me just how much my sisters-in-law and brothers-in law, try their best to be a part of our lives even though they are so far away.  I feel the love of my dear friends J, F and L across the miles and it keeps me strong and it was because of these people and a few used-to-be-strangers that my family and I were able to stay afloat on a wave of love that took us right to the end of 2014 and washed us safely onto the shores of 2015.  We’ve gotten to our feet, we’ve breathed in the fresh air and we are filled with courage but most of all we are filled with love  – love that we want to give.  I wish you all a 2015 of love.  Love to give.  Love to receive. Love that will set us free.  Love that can change our families,communities and just maybe, change the world.