Planning Everyone’s Freedom in Spite of the Hand You Were Dealt.

I remember talking to a fellow “autism mom” a while ago.  We were discussing our ideas or more likely our hope that our children would live independently (with assistance) away from us.  Many parents like us often resign ourselves to the notion that our children will have to live with us forever but when Adam was diagnosed, I made it my mission for him to become as independent as possible because, according to this mom I was speaking with, we didn’t sign up for this. We had babies who seemed okay, who by the time they were 2 had shown enough signs to warrant the diagnosis of autism.

Call me mean, call me cold, call me whatever you want but don’t forget to call me honest. My words are based on my family’s experience with my child because each child with autism, like every child on the planet is different.  My kid is not noise sensitive, does not adhere to rigid patterns or schedules, he can be touched, does not rock back and forth and he eats a variety of food – not just chicken nuggets or couches like so many autistic persons do. In fact, if you just saw him out and about without really scrutinizing him, he would appear to be another lanky, energetic teenager. Adam does a shit load of things and functions in situations that no one(except for me and his father) ever expected him to. We put in the love, the work and the time as did he and he has found his niches in this life and looking from the outside in and the inside out, he has a great life because we always believed if we challenged him in good ways, if we taught him to cope with the world, if we helped him cope with his environment, he would be able to live as full and as independent a life as possible. We never let the strange habits, odd reactions and sensitivities he occasionally displayed prevent us from teaching Adam how to cope with this world and function in it. We learned to work through things together. Taught him not to be afraid or wary of certain noises or things while taking into consideration the extra time he needed to learn to handle the things that were overwhelming to him. I suppose looking back I could say Tom and I took whatever the autism threw at our son and at us and we molded it into something that was manageable.

Two jobs, two elite level competitive sports, and an aptitude for the arts later, we have a well rounded young man in spite of the challenges of autism.  The problem with what we have done to make him as capable and independent as he is, is reflected in the type of person he has evolved into. I suppose we could have chosen to take all the sensitivities and oddities and choose to let them overwhelm him and we could have made the decision to sound proof his room, put headphones on his head, not attempt amusement parks, not put him in competitive sports and let him exist in his solo world, spinning the wheels of toy cars while lying on his side. Maybe if we did that he might be a happy little lump content in his own world. But I did not want him living in some facility, not in touch with the world and not in touch with us.  So I picked him up off his side, sat him on his bottom and showed him an alternative to playing with toy cars and changed his life for what I still believe is for the better.  I reached in, found his little hand and held on to it tightly because I was not losing my child to autism. But maybe wanting him in our lives also bit us in the ass. There is no way to sugar coat this (but I suppose I can be polite) – our son is a jerk. Adam has many normal teenage qualities which I accept. Like most teens, his father and I (mostly I ) are major irritants in his life. He doesn’t like being with us anymore, does not want to do anything with us anymore except if he thinks its fun and he is moody with us 24/7. He hates listening to what we have to say. One minute we were loving and holding this gorgeous, curly haired cherub. We were teaching and helping him and cheering him on as he slowly but surely became capable of so much and now that he treats us like shit, it’s quite the slap in the face. Teenage years are not easy  –  how can they be when you have one foot in childhood and the other in adulthood and you drift in between the two worlds every 15 seconds?  Add a big scoop of autism to that and you have puberty stink, puberty ugly, puberty jerk…whatever you want to call it.

The hard part for us is not so much that he is as teenage as it gets (there are two teens in the house and we get the vibe of the stage of life they are in), it’s Adam’s wretched personality. He seems to have a penchant for deliberately getting under our skin. He has certain things he will do that he knows will be disruptive or annoying to us and try as you might you can never truly ignore him. He won’t let you. There are things you can do, medication you can use that improve focus, reduce anxiety, etc. etc.  but you cannot medicate the asshole-ed-ness out of a person. If our son was not autistic, he would still have the personality he has. He seeks negative attention and pretty much only with us.  I hear his support workers and teachers talk about how even though he has occasional moments that are difficult, he shows great empathy. I hear details of the conversations he is able to have now and how helpful and motivated he is and at first I didn’t believe them but these people don’t know each other so why would 10 different people who don’t know each other, lie? I have also seen video footage of him doing all these great things and showing how nice and well adjusted he is and the minute we come home he often goes right to button pushing. It’s almost like some sick, twisted way of drawing pleasure at our expense.

Our relationship with Adam now is nothing like it used to be and I don’t know if it will ever be warm or close again. I think when he lives semi-independently with like room mates and he will really get a sense of his independence from us he may have a greater appreciation for any time he spends with us. It has been very hard trying to love someone who does not like you or perhaps may not love you. I don’t know how he feels about us and I am not going to assume because he lives with us or that we are his parents that he loves us.That would be naive and even a little arrogant. His condition is based on an inability to understand or display emotion in a usual way. His condition results in a constant social struggle and while we accept these things, it is clear that what he likes to do to bother us is intentional and reserved for us.

We have worked hard to help him become (as did he) the whole person that he is today. Adam is very successful and while he completely rejects us, it is not the rejection that is the difficult part – it’s the pleasure he seeks by trying to make us upset. It is the disrespect and the shitty thing is, in spite of the struggle of recognizing emotions etc., Adam knows when he and others are being disrespectful. His teachers can testify to that. It has put a bitter taste in our mouths when it comes to dealing with him. There are some days when we go through the motions to get to the end of the day with him and we are so counting down the days to when he takes over living in our current home and we move out.

Before you pass judgement note that we are going to have to buy a new place for us to live without having the luxury of selling our current home in order to have a down payment for a new one. We are letting our son continue his life in the home he had since he was 7 because it makes his living situation easier for him. He will be close to transportation, his work and the places where he practices for his sports.  It is in close proximity to grocery stores, the mall, our church, the movies and restaurants and everyone in the neighbourhood knows him.  We have taught him how to walk to and from many of the places he needs to be and we have done all we could to do what ever parent of any child hopes to do which is simply to raise happy, respectful, kind and independent children. We are not perfect parents by any means but we did the best with the hand we were dealt because he was brought into this world out of love and was raised cloaked in love and as hard as it is for us to warm to him lately, he is very much loved and cared for. But puberty was not kind to him and certainly not kind to the family and most days we just want to scrape him off of our skin because as much as every day is a new day and a new opportunity and a new day to hope – this child, at least one time in every day intentionally does something disruptive (and he will tell you it is his intent to be disruptive and disrespectful) and we are tired of that. Yes, he is special, he has in many ways been a blessing and he has taught us a lot about ourselves, himself and our capabilities and strengths as people and as a family but man oh man, has he ever tested our patience and love. I understand he has many things he struggles with or copes with to get through a day. We have made our home and the places we go and the things we do as easy and as tolerable for him as possible. We have observed him, listened to him and respected his needs and we are very proud of him but we just don’t like living with him. We are good people.  We are not to blame for his autism although as a mother somewhere deep inside of me I will carry unjustified guilt about this child’s autism right to my grave.  We didn’t sign up for this and we don’t deserve to parent him right through to our death either. I cannot wait for the day we part ways because he will finally get what he wants – to be free of us and we will finally have part of the life sentence dropped. The life sentence of being the parents of a child with autism whose “thing” is to seek negative attention every day. We plan to go on a long vacation the day we leave our son in our home with room mates and support. He will adjust to his new life the same way he adjusted to travelling with his Special Olympics teams without us and his Co-Op at school and getting about with his support workers without Mummy and Daddy.

I suppose I could say I should have been careful about what I wished for – I got an independent kid who is capable of handling his life but his father and I also ended up with a kid who realizes this about himself and who now sees us as irritants and obstacles whom he dislikes yet in some bizarre way he likes it a lot when he succeeds in making us mad. He says he is sorry but he never is as in the very next breath he sets out to push buttons over and over again.  We do a lot of ignoring, re-directing and walking away in order to squash his attempt at pissing us off. He walks away defeated most times when we are able to see our plan through but in spite of the love his father, brother and I carry for him in our hearts, we look forward to the day we walk away because just maybe that will be the avenue we can use to re-build our relationship with Adam.

Like I said before, I don’t care if anyone passes judgement on me or my family because we know the life we have lived.  We know the sacrifices the three of us have made because we love Adam. We also know we did it on our own mostly with the help of strangers we had to trust. Strangers, we have come to know and love, all the way from Alberta to Ontario. Strangers who also helped Adam achieved all that he has. I cannot speak of other persons with special needs, but living with Adam’s autism, for all the goals and milestones he’s reached, for all the pride it has filled us with, for all the good, I fear there have been more difficult times – times where we have been sad, times where we have struggled, times when we felt utter despair.  We have never been able to just put him in the car and go anywhere with him…to this day, there always has to be a plan and a plan B and C. In the midst of the autism, we managed to raise another little boy as normally as we could – giving him the attention he needed and the guidance and time he deserved while having to ask him to understand that he had to learn to wait… a lot.  Our second son could have rebelled, could have resented us and he could have gone astray but instead, he waited, learned to be quite self-sufficient at too young an age and still found time to help us out with his brother. He has been the best support worker Adam has ever had and he has helped him fit into this world in a way we could not teach him. Logan taught Adam how to be a kid, how to act “cool”  and how to, as he ever so sweetly puts it “blend in” and he has stood up for his brother in ways no younger brother should have known how to do.  He taught Adam how to bike to their favourite restaurants and taught him how to use his bike lock and how to work the combination. He taught him how to use money and how to use a cell phone just as well as any teenager. He took over escorting him to the bathroom and showing him how to go in, do what he had to do in the washroom and getting out. When he is with me and Adam he is the one who takes on what Tom would ordinarily do in the public washroom with Adam. Logan is the one who reminds him to keep his stims at bay and not draw attention to himself which can make him vulnerable.  He took over doing that at age 9 because he knew Adam was too tall to come into the ladies room with me at 11. I remember the day he told me,”I can do this Momma. I’ll do it because you don’t have boy parts”.  Logan didn’t sign up for this either but he has such love, acceptance, patience and respect for his older brother and wants to help Tom and me with him any time that he can. That kid put up wit all that Adam threw at him and still, he continues to persevere through the best and worst of what is thrown his way. Logan needs space from Adam as well. He has to go off and find and be his own Logan because, you see, he was given a life sentence too and he deserves to not have to worry about or look out for Adam the way that he does on his own volition.

This past September marked 15 years since Adam’s diagnosis of autism.  He will be 18 in January.  The worst years were between ages 3 and 4 years and between age 14 and now. There were 9 years where things were decent, maybe I could say more in control, happier, manageable perhaps is another word I could use … but it was never easy or simple and I know life is not simple or easy but I feel with autism, if you don’t look for your breaks, take your breaks and work towards breaking away from your child …this frigging puzzling condition will break your entire family.  I’ll be damned if I let that happen. I love my son but I love my other son and my husband too and I love myself and I will not let myself be sorry for Adam because he has autism. I am not going to try and blame his personality on his autism either because we all have a personality and at the end of the day we are who we are. The love in this family is what has kept us whole and it is with the strength of this love I will let Adam and the rest of us be free knowing we have done a fantastic job in getting him to adulthood by recognizing what needed to be done for his well being in the long run.  We could have given up and thrown our hands in the air when things were hard. We could have felt  sorry for ourselves. We could have wallowed in helplessness – but we didn’t. When people said he couldn’t we helped Adam become a person who could and while he is a whole lot better in the way he behaves at home, the things he says and does to intentionally irk the 3 of us … the way he treats us is unfair and that is why more than ever the plan is in motion to set him free and give him the space he wants and the space we need.

I hope for other parents with kids with autism, my honesty will set you free as well. Some people can smile and find everything their autistic child does is beautiful and wonderful and they when they talk they have such empathy for their child when the “raw autism” days take place. They live in an autism central atmosphere and the autism defines them.  My family is different.  We will not pretend that we are okay with what Adam does sometimes, especially since we have learned to separate asshole behavior from autistic behavior. We will not pretend that living the way we have had to was easy or cool. We will not sob on your shoulder but know our shoulders are broad and we have managed our lives without disrupting anyone else’s. I hope my honesty will let parents know that it is okay to feel anger, sadness, resentment etc because they are very normal and real feelings and reactions and if you feel them and not smother them, if you talk about them, you can move on with a clear head and heart the next day. No one signs up for this. No one deserves the life you have when you have to deal with the issues of these children/ teens/ adults. I think if you feel pissed off, get it off your chest with a therapist or a friend or in a group and to hell with the people who may judge you.  I’d like to see them live 20 minutes of the lives we have.  It’s okay to feel however you feel but do have an outlet so that you can keep it together when your child has a day that can push you over the edge. It’s okay to leave your child with a sitter and go out for 3 hours, 10 hours or for a day or 2 and not call every hour to check in. If something goes wrong, someone will let you know but most importantly, it is imperative to have an adult living plan for your child because he is not going to be a child forever and like any other child he may damn well want his independence from you.  If that is crystal clear to you as it has been to us…let him or her go.

I have done a lot to enhance my son – I remember running alongside his bike bent at my waist while pushing his feet onto the pedals for weeks until he figured out what his body was supposed to do on a bike. The day he did he happily and proudly rode off on his own.

I remember pre-ordering our food for months at a restaurant when he was little and sensitive to everything outside of our house. After 7 months he was able to go to a restaurant and wait to be served and could tolerate the ambiance. My husband taught him to skate in hockey skates instead of the double bladed skates everyone thought would be easier for him.  Today, Adam is a highly decorated speed skater, skating on long sharp blades at high speed. His father figured running would be an outlet for him to use up all that excessive energy he constantly has.  Adam has trouble keeping still so Tom taught him to run in marathons so well that he left his bather behind in his dust and today he is a decorated track athlete. We have done our best to make him successful  – not because he wins events but because all these things have made him happy.  Adam skates and runs and drums and sings with a big smile on his face. He is done with us now. We get that.  Have no fear son, you will be living your dream very soon and we will, God willing be living ours because none of us, especially you, ever signed up for this.

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The Meaning of the Word “Special” in the Special Olympic Games

“The genesis of Special Olympics was a summer day camp that Sargent and Eunice Shriver started in the backyard of their Maryland home. In July 1968, the world witnessed the first International Special Olympics Games at Soldier Field in Chicago.” (Special Olympics Website)

red-ftr-logo special o logo

When my son’s speed skating coach put our son in his first Special Olympics event he was just 8 years old.  She told me she saw that he was capable of learning how to race and in time he could become a great competitor.  What I heard was that he was good enough to compete with people with special needs and that he would race in an easier category of games.  Dealing with Adam’s diagnosis was the biggest blow to my husband and me as parents, hearing that he was good enough to compete in the Special Olympics was not as heavy a blow but it was confirmation that he was different and that there was a place for different.  I would be lying if I said it didn’t bother us a little. What I couldn’t see at the time was that having a place for different was very good thing. What I did learn, was that different, over time, could learn to perfect a skill and that natural talent could be turned into something fulfilling, something to be proud of and something remarkable that amazes us every time. Thankfully, in spite of ourselves and those initial unfounded feelings  we decided to take a shot at having him join the Special Olympic Program and compete in the games.

His first race day came and we suited him up, explained over and over again what was going to happen and what he had to do.  We told him that his grandparents and little brother and we were there to cheer him on and all he had to do was skate.  He started to fuss and cry and instantly my husband, being the caring and protective father that he has always been was ready to pull him out and take him home.

first race

“He’s not ready, ” he said.

“He has to get ready sometime.  We have to at least try one race,”  I urged.  My husband shrugged and unwillingly joined his parents and our younger boy in the stands.

“Adam, are you scared?  Are you a little nervous?” I asked him.  He stopped fussing and looked at me with his glassy, big, brown eyes and gave me a slight nod.

“How about you wear your bike helmet instead of the racing helmet they gave you?  Would that feel better?”  Another slight nod.

I swapped the helmets and kissed him on the cheek.  “Now listen.  You are fine.  This is the ice you skate on every week. Just skate and keep going until someone tells you to stop, ok?”

He didn’t nod or say anything but I could tell he was more comfortable.  I remember that first race like it was yesterday and it still makes me smile.  It was the birth of the chants “Go Adam Go!”  “Keep going buddy!” and “Skate hard, skate fast Ad!”  Our little autistic boy skated right to the finish line and crossed in first place in his first race.  His coach ran up to us beaming and said “He did it! And he’s only 8!”  Race after race that day, Adam crossed the finish line in the top three and got the taste for competition and fun.  It was on that day that our family learned the meaning of the word special in Special Olympics and the warm feeling it created inside me and it was a feeling that has stayed with me for 9 years and will stay with me forever.

“Emanating from the mission, the ultimate goal of Special Olympics is to help persons with intellectual disabilities participate as productive and respected members of society at large, by offering them a fair opportunity to develop and demonstrate their skills and talents through sports training and competition, and by increasing the public’s awareness of their capabilities and needs.  The Founding Principles support this goal by emphasizing that people with intellectual disabilities can enjoy, learn and benefit from participation in individual and team sports, underpinned by consistent training and by competition opportunities for all levels of ability.    According to the Principles, Special Olympics must transcend all boundaries of race, gender, religion, national origin, geography, and political philosophy.  They also state that every person with an intellectual disability should have the opportunity to participate and be challenged to achieve their full potential, with the focus at community level to reach the greatest number of athletes, strengthen their families and create an environment of equality, respect and acceptance.” (Special Olympics Website)

The Special Olympics events are not about competing with a disability or a challenge.  It is about competing in spite of them.  It’s not about competing at an easier level but about competing at your highest level and over the years I have seen athletes in division 4 persist and find themselves competing at a division 3 level the following season, each season inching closer to a more challenging division because when athletes with challenges are encouraged to achieve their personal best, the sky is their limit. The Special Olympics Program is about inclusion, expectations, goals and the freedom to participate at one’s best in a sport (or sports) one loves.  It is about achievement, pride, sportsmanship, freedom and most importantly it is about fun.  The Special Olympics is about teaching anyone willing to learn that given enough patience and time, everyone can achieve greatness and everything is possible when an opportunity is given, when words of encouragement are spoken and when there is enough support. It reminds parents and coaches and volunteers that there is so much good and so much talent and joy in each of these athletes and it makes us dig deeper within ourselves to do right by them by finding the energy  and time and love to give them the training and support they crave.

Our son Adam found his freedom in sport.  It is a release valve for him from all the pressure he must feel when he has to cope with the daily goings-on in his world. It has allowed him to be a part of not only the Special Olympics team but a part of his speed skating club and high school track team. The inclusion and sense of purpose Adam gets from his sports have given him so many positives to draw on in his life. Before he joined the Special Olympics program, I did not know if Adam would find his niche in the world. We never thought he would find his passion and because he plunged into a deeply private, puzzling and exclusive world his father and I didn’t think we would be able to find a life line strong enough to draw him back to us.  Now here we are, proudly watching a young man who used to be such a lost little boy cross numerous finish lines, with incredible times and speed, breaking records and standing on podiums proudly wearing his hard earned medals. What a long, winding road it has been! What a great journey that is going to keep going way past our lifetime as parents.

The Special Olympics has given him the opportunity to make friends, to travel independently of us and the opportunity to perform at his very best.

 

Our boy is FAST and now that he is older, his ability means something to him and I believe he is very proud of himself.  He is okay if he doesn’t win (well, sometimes he’s a little frustrated with himself when he loses) but he certainly understands and appreciates participation as much as he appreciates being on the podium. Adam has represented his club, region, and province in speed skating and for the first time he represented his province in track and field.

These games are a pleasure to watch.  They are as competitive, fast and exciting as any competitive games that exist and the athletes are well trained and possess the physical attributes to compete.  It is fulfilling to watch people of all ages, sizes, shapes and challenges come together in the spirit of friendship and competition.  There are smiles before, during and after each event as they race before their friends and families who cheer loudly and proudly.  Expectations are high and every effort is applauded.  I have never been to an event more encouraging than a Special Olympics event. I am so grateful for these games for what it has given to my son, his fellow athletes and families like ours. Adam is going to compete for years to come and he is going to experience that joy and accomplishment every time in both the summer and winter games.

 

blog 10     provincials with dad

To me, the word “special” in Special Olympics does not mean disadvantaged in any way.  It is more of a description of the feeling you get when you attend these games.  There is a warmth and feeling of goodness at the venue and there is an aura of happiness because win or lose, these athletes know they have worked hard, have overcome many challenges and have given their best effort to get to the games and their sense of pride and confidence is so high it creates an infectious feeling of goodness.  I encourage everyone to visit the games when they are in your area and see for yourself why it is so important to keep these games alive year after year. See what the games can do for you.

http://www.specialolympics.org/RegionsPages/content.aspx?id=40725

Go watch. Go cheer.  Go be amazed at the Special Olympics.

I’m not the only parent that feels this way. Read more about the effect the Special Olympics has had on the lives of athletes and families worldwide.

http://www.specialolympics.org/SimpleStories/SimpleStory.aspx?id=42527

See what the games can do for athletes with Intellectual challenges all over the world.

http://www.specialolympics.org/RegionsPages/content.aspx?id=39851

http://www.specialolympics.org/Responsive/Ashley-Setting_Goals.aspx?src=homestorylist

http://www.specialolympics.org/Responsive/Revolution_for_Unity.aspx?src=HomeStoryList

As parents and care givers we have fear.  Can a person we know with an intellectual challenge learn a sport?  Will they have difficult behaviors borne out of frustration during the learning process? Are they coach-able?  There can be so many questions and technically they all originate in fear – our fear.   Then there are parents and caregivers who have given up and honestly, that is understandable. Raising and caring for someone with special needs is exhausting and complicated but wouldn’t it be better for everyone concerned if the person with the challenges has an outlet…has something to look forward to…has something new to learn with goals to set and achieve?  Wouldn’t it be great if they were able to leave the house and travel with their team for a few days?  Wouldn’t it be rewarding for everyone involved to see the person soar?  The answer to all those questions is YES.

Don’t be afraid. Here’s how to get someone with intellectual challenges involved in the Special Olympics.

http://www.specialolympics.org/Common/Special_Olympics_A_to_Z.aspx?aspxerrorpath=/Sections/Who_We_Are/Our_Athletes_2.aspx

Thank you Sargent and Eunice Shriver.  You have changed the lives of countless intellectually challenged persons and their families for the better over the years and for years to come. As Adam’s mother, I am thankful you did.

ribbons2adam recentribbons

 

 

 

 

 

 

 

 

 

Don’t Look Me up and Down: Look Me in the Eye – a Fit Woman’s Opinion on Non-Verbal Body Shaming

For some time now, we have been witness to wonderful campaigns directed towards the acceptance of all body types, especially, if not solely, the various body types of women. The Dove campaign is to be applauded for giving every woman a chance to champion themselves and identify with an image much like their own on television, the internet, billboards and in magazines.  In a world where you have to look deep beyond the surface to find what is real, it is important for people to see a reflection of themselves in advertising.

On social media the acceptance of self was such a hit that there were even spin off topics borne by the politically correct righteous that made me hold my tongue until now.  Let me elaborate.  As a woman, I feel strongly that every person (men included) should feel good about themselves.  I believe that everyone must have as many (if not more) attributes that they love about themselves than ones they dislike.  I, and some who share my belief, feel that people must have a sense of self worth that allows them to veer away from behaving and or dressing inappropriately to prove to themselves and possibly others, that they are cool, young, sexy, hot, in control or whatever tier of esteem they are trying to attain.  There is something about showing less to ever so coolly reveal that there is so much more to who you are.  There is something to be said for elegance and grace and quiet confidence at every age, size and shape.  But whenever anyone implores others to really reach for something more substantial within themselves, they are criticized by the politically correct others who feel we are “shaming”.  These people like to say if a person (and let’s use women in this example), a woman in her 40’s feels to dress like her 14 year old daughter, who are we to judge her?  If she wants to let her butt cheeks hang out of her shorts or she wants to wear a tight crop-top with leggings, we should applaud her courage. What then do we say about a scantily clad  teen girl at a dance not walking away from a group of boys until each one of them upon her request, makes out with her and her friends?  Is this group of young teen women empowered? Are they controlling their sexuality?  Dictating to the opposite what they want done, when and how?  Is she empowered when she takes to social media and posts revealing photos of herself?  The “selfie” takes on new meaning then, doesn’t it?

Okay. Sure. Maybe I’m a prude. Maybe I am guilty of “shaming” other women but looking in from the outside, I can’t help but wonder what there is to gain when children disassociate themselves from their mother’s attire or demeanour in embarrassment?  What is there to gain when the persona that accompanies the outfit draws the people who want to be a part of the show for a moment, who then walk away speak insults under their breath?   Why do my sons have to be privy to your exposed self in a public place that is not a beach?  Congratulations, Mom for looking “hawt” and sexy at a Minor Level Sporting event.

In the spirit of championing oneself I am going to take my turn to lash back in defence of women like me – active women whose bodies are perfectly imperfect.  We have muscles and are generally strong and in good health.  We are the women who like our sports, our dance, our yoga and whatnot and we play because it’s fun and relaxing and we are okay with a little sweat and okay with our post partum bellies that could, in the right light look like a deflated beach ball.  We are the women who LOVE to eat but stop when we are full.  We eat junk sometimes only without the excuses and we own the consequences and do something about them. We never criticize anyone’s appearance yet so many people have no problem telling us how we are lucky we are to be skinny (when clearly we are not) and have no problem calling us names in jest (in jest my ass) because you are dissatisfied with yourself. We are the women who don’t dress to flaunt, don’t triple coat our faces with makeup yet look beautiful, comfortably wearing what we love and being who we are. So for those of you who talk to us but deep down dislike us, do us a favour – stop trying to shame us with your quick head to toe glances of jealousy.  I have been exposed to that since I was 6 years old.  I have noticed grown-ass adults  – family friends, 4 specific high school teachers of mine and worse, a couple relatives who would stand right in front of me, talking to me doing the head to toe scan sometimes even telling me what they did not like about me or what I was wearing in the poor guise of a joke. And again, I was a child at the time.  It was evident they were not listening to a word I was saying. I knew it at age 6 and I have always known it.  They did not hear one iota of the conversation because they were busy scrutinizing (or like we say in Trinidad, macoing) every aspect of my body , my face, my clothes, my shoes and my hair.  Hating ALL of what they saw because they truly LOVED what they saw and just could not have it, or develop it because it was MINE.

I remember telling my mother I noticed when some people had conversations with others, myself included, they tended to look not at the face when they spoke to you but did what seemed to be several critical, quick glances at a person’s clothing and body and did so quite frequently as they spoke. I asked her why this happened and my champion mother simply said, “Jealousy, baby”.

But, I was a child and I had nothing.  Nothing at all except my childhood, my imagination and myself.  I had what everyone had and in the case of adults, you could say I had even less so why would they be jealous?  Then my mother said to me ever so calmly, “I am sorry people look at you like that.  I know how it feels because I have had that happen to me too. – I think it is really rude.  Perhaps they don’t realize they are doing it, but I think deep down they do know.  I think they did it once, then twice and then it became a rude habit.  That is their problem, not yours.  In your whole life there will be many people who glance at you up and down repeatedly because their parents did it and they unfortunately learned to do it too. They may be smaller than you, bigger than you, older or younger or the same age, They may be wealthier, poorer or of the same income. They may be a different colour or religion than you; they may not. These  people may never look at you in your eyes when they talk to you.  It is an attempt maybe to make you feel self  conscious. In those moments I want you to feel self assured that you are perfectly fine. Just remember that is their jealousy, their lack of confidence and therefore their problem, not yours, ever. You must always draw confidence from those people and never let their glances get you down. Be your comfortable self.”

My mother may not have gone to a fancy university or held a position of power in the world but she has always been powerful to me.  My mother knew her role as a mother.  There was a friendliness about her without her trying to be our friend.  Lines were never crossed by her or us and she injected into us the power to be quietly confident and when we needed to, be boldly so.  Because of my mother, my sister and I have been able to give our children the confidence they need in what is a tougher, more bullied society and dare I say, I think the confidence she gave to us and indirectly to her grandchildren can be considered life saving.  We all hear the stories of the kids who tragically end their lives because they just couldn’t “shake it off” or “get over it” as some people like to say.  There are so many people who just love to dig and dig at you until you start to doubt yourself.  They are annoying and they make life uncomfortable and the best thing you can do is turn it right around and show them that you are not the problem. They are the problem.  They are the ones spending time trying to figure out how to bring you down and in reality it stems from their self dissatisfaction. They say things to make you feel insecure because they are insecure.  They reject your knowledge because they are ignorant. They scoff at your attempt to lead because they are born followers. They mock your talent because they wish they possessed a fraction of it.  They pick on those who have disabilities because the determination and accomplishments of the disabled scare the shit out of them because they have no courage.  They criticize your clothes because they dare not dress like you because they can’t buy your personal cool.  They like to bare it all when they should be covering it up because to wear something decent is to admit they have shortcomings, I suppose.

So while I agree we should all be happy with ourselves, our varied skin tones and shapes and sizes I do not for a moment think that people who have been made to feel shunned and bullied are not guilty of bullying.  They are often adults who have taken the bitterness of the pain they felt and instead of using it for something positive in their lives, they ever so subtly twist it into other people who have done nothing to them personally…except of course showed up looking healthy or tastefully dressed.   I had yet another one of those up and down glances happen to me today, way before I had my morning coffee. I decided right then and there that I was going to write about it once and for all.  I am going to champion myself because I don’t look anyone up and down and scrutinize them and I am tired of having it done to me.  In fact, I have spent many years teaching my boys, especially my autistic son, to look people in the face when they are speaking to them, yet so many people don’t do that to me.  I remember Adam telling me that looking into people’s eyes is too much. Too much information so he looks away so he can focus on what is being said to him yet he has learned to glance at a face in order to illustrate he is engaged with a person.  That is so much work for him, yet he tries so hard to do it because he has figured the value in it and he knows he needs to embrace some of these traits to function in this world.  Meanwhile, people with no sensory processing disorders, people who don’t have to organize anything at all in order to have a conversation give me the up and down scan when they are speaking with me?  To hell with you and your rudeness.  Here’s a news flash on behalf of women and all people who are fit and healthy who try to take care of themselves.  We have reaped what we have sown and if you don’t like it, or have that little zing of envy or hate when you see us because you feel we don’t understand what it is like to be you with your issues – too bad. Champion who you are and own it. This is called life and everybody’s got something…some shit that grabs us by the gut and we have to deal with it.  God knows I was dealt a hand and a frigging half in my life.  Would you up and down scanners preferred if I looked haggard and worn because my life has not been easy?  Would that have made you feel better?  Would you have looked me in the eye then? Perhaps you would have pitied me.  I have never needed pity thanks to my upbringing and I am glad my retaliation to adversity was strength and wellness – of mind, spirit, soul and body.

If you ever had a conversation with me and you’ve looked me up and down (and you damn well know if you do it because you have control of your eyes) please don’t talk to me again if you are going to do that. It’s rude and you are wasting my time and you are making me waste precious breaths and words. Don’t talk to me if you aren’t going to engage or listen.  I’m really okay with that. I’d rather sit quietly alone with my thoughts  for company because I am comfortable with myself. I was taught and I teach my children to look people in the face when speaking to them and I expect the same from others. So all you head to toe scanners out there, know this – the group of us you love to hate in your head because we chose to work at taking the steps to fell healthy and well – we make no apologies for the way we are so enough with looking us up and down and look us in the eye.  What you are doing is distracting, rude and disrespectful and when you do it to me, it only reveals how insecure and vulnerable you are.  Worry less about me and work more on you because you are just as bad as the cretin bully who spat out hurtful words to you.

Couldn’t Come Up With A Title.

love-1

As 2016 morphed into 2017, work surged. Busy at work is a good thing but there is also an ugly side to it as well.  An increase in volume means an increase in revenue, an increase in expenditure and in working hours, increased tiredness and shorter fuses.  Add to that raising 2 teenage boys, one a bit more difficult at times than the other, perimenopause, running a household and well, living life.  I thought I had a head start when I made sure we transitioned from the Christmas mode early enough in anticipation of the workload, but really, we all know you just can’t be ahead of the game all the time, especially when you want to be or feel like you have to be.  Very quickly things began to get on my nerves and while I tried to stay even keeled and patient, I was feeling like I just wanted to scrape off everything and everyone close to me. I literally felt like life was clawing and scratching its way all over me and it was overwhelming.

Needless to say when that happens around here, so do some pretty intense and “spirited” arguments followed by most certain tension.  Over the years Tom and I have been very real.  We have a good, strong marriage but certainly not a perfect one but we work at it and have fun with it as well.  I have known people who have said they never argue or fight ( oddly enough one person who has said this to me so many years ago in my living room in Brockville with her cutesie, shitty little smirk comes to mind.  She has since divorced her husband … go figure little Miss goodie Two Shoes Critical ).  Living together and working together has been a skill my husband and I have mostly mastered over the years and I say mostly because there are some damn days when mmmmm boy….OYE!  Alas, we are human.  It’s been better lately and we are getting through the crunch of the workload and we are getting back to the system we are used to but occasionally we both sense that the other is at the edge of tolerance.  We haven’t really made time to do our usual Netflix marathon.  We have been out to lunch but have been too mentally wiped to really talk and of course we are being supportive of Logan as he writes his first high school exams – being available to listen to his presentations, be there to help him if he is stuck with the studying and of course to drive him and Adam to practices and meets and appointments.  Add a dash of Adam’s occasional particular brand of autistic adolescent B.S and you get two people who generally enjoy spending time together, just happy to sit in different rooms and of late, fall asleep long before the other comes to bed.

This self preservation and intentional and mindful increase in patience and tolerance of each other has shown me that working towards building a successful business is draining.  Don’t get me wrong, we earned it, we want it and we are doing it but the lesson here is the same lesson one learns when times are tight and there is not a dollar to spare.  The lesson one learns when the baby has colic and has screamed for 24 hours and you instantly had him off without so much as a thought or even a “hello” to the person who has been grinding it out at work all day.  It is the lesson that teaches you about making an even greater effort to keep the relationship healthy.   You have to make a greater effort to smile, to greet and to listen.  You have to make a greater effort to know when you have to cut into your unwind time, tablet time, computer time or TV time and include that person you fell in love with.  You have dig deep inside yourself and make a great effort to make the time you spend together become time spent together and you have to make a greater effort to leave work at the doorstep.

We have a good but busy year ahead of us.  The tension is there but we have a better awareness of it, I feel.  I’d like to get back to being mushed together on the couch watching some TV series and I’d like us to be in bed at the same time, falling asleep at the same time and waking up late and staying in bed chatting about our random heavy duty topics without having to jump out of bed and get a head start on the workday.  I hope our lunches and dinners out can be free of the distraction of these initial busy first months or that these months will fly by and we can re-connect over a meal the way we usually do.

At least, though we …he… has taken a step toward that in the form of the grand gesture of us going to New York for my 50th birthday.  He has never been and I love going there and I am looking forward to sharing this experience with him.  I hope when we are there we let go of everything for the four days and I hope that time away from our usual environment will allow us to experience that familiar feeling we both love about marriage – the feeling of being “at home” when you are with the person you love. We are lucky, Tom and me.  We have had a hell of a ride on the fastest of roller coasters. Anyone who knows post-baby Daniella, will tell you I am no longer a willing coaster rider but on the life ride with Tom, in this marriage, in this crazy world with these two humans we are trying to raise to be good men, I have always felt safe with him.  As much as I may question or doubt, I can honestly say, he has always stuck to his word when he says everything will be alright.  He makes things right. He makes them better and he makes bad experiences fade into the past.  We have loved passionately, fought passionately, been worried, afraid,  hopeful  and happy on this life ride.  We have seen dark times and the brightest days and his optimism and my perseverance have complimented each other in a way that is demonstrated by the characteristics of our sons.  In some bizarre way, we work and well… we fit.  And as maddening as we can be to each other, and as polar opposite as we are there, is no one I would rather love, kiss, hug, lay beside, work with, sigh at, roll my eyes at and be frustrated with. I was reminded of that this week when I heard that my friend’s husband passed away and just this second when Tom told me one of his radio bosses (not much older than we are) also passed.  I have seen my clients go through it and I have seen my mother deal with it and I can see how painful, frightening and unfair it is to have the person you love leave you behind.  Life is so unpredictable and can change in the blink of an eye.  I hope for the retirement brochure image.  You know. that idyllic scene of two people travelling and exploring a new phase of life in their more mature years.  I yearn for it, pray for it, though I know it is only 50% up to us to get there as the other 50% is pure fate. I also fear not getting to experience it because I want it so badly.

So, tomorrow is another busy day.  He is booked solid with appointments and I will divide my time between getting my office into work space condition, touching base with a few clients about some projects on the go and going through and responding to our e-mails.  We will be working as a unit in the most separate of ways, ploughing through this next month, coming up for air when we get to the Big Apple. This is our life.  It’s not perfect and it is not always fair and it is not always all shits and giggles but I think it’s pretty great, even when it sucks because I’d rather it suck with my three men than without them.  Whether you are in a state of bliss, state of despair or in some kind of weird funk like me, I wish you peace and I wish you the good sense to always reflect on what you have and what you stand to lose.  ( Of course, if your situation is utterly shite and you need to move on, please do, because this is not about putting up or being content to settle with a terrible person or situation no matter what  – let’s be clear on that).  Here’s to clarity, to ploughing through tough times to get to the better times and here’s to time well spent with those well loved.